I hated leaving the last post on such a negative note so I dug deep and remembered something good! This morning I needed to reschedule…
View More A Need IndeedMonth: December 2022
End of My Rope
They say when you’re at the end of your rope to tie a knot and hang on. I don’t know if I can tie any…
View More End of My RopeBlock By Block
Just got blocked. Trying to find another COVID clinic. Barnes-Jewish Hospital (BJH) is trying but I am not making progress. So, in an effort not…
View More Block By BlockThe Good Nurse
Last time I mentioned how aggravating it is that medical staff is so overworked that too often patients are left waiting for responses way too…
View More The Good NurseJust Leave A Message Maybe I’ll Call
The Sundown Rule is when you try to respond to requests by sundown the same day they are received. Today we have more ways to…
View More Just Leave A Message Maybe I’ll CallBedside Manners, Please
Geez! I never want a doctor to speak in glitter-fluff and rainbows but dang a bit of bedside manner can do a patient good. Today…
View More Bedside Manners, PleaseSupport Groups
I’m actually glad that I didn’t know anyone else with juvenile rheumatoid arthritis (JRA) growing up. I didn’t have access to support groups so I…
View More Support GroupsHoliday Fatigue of a Different Kind
Most of us start wearing out from all the holiday festivities by now. Having time off to get things done or just browse should be…
View More Holiday Fatigue of a Different KindHeart Punch
Yesterday a new symptom/event happened. A few minutes into my treadmill run a chest sensation happened. Not the typical heart flutters but like my heart…
View More Heart Punch