I hated leaving the last post on such a negative note so I dug deep and remembered something good! This morning I needed to reschedule…
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Category: Long COVID
End of My Rope
They say when you’re at the end of your rope to tie a knot and hang on. I don’t know if I can tie any…
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Block By Block
Just got blocked. Trying to find another COVID clinic. Barnes-Jewish Hospital (BJH) is trying but I am not making progress. So, in an effort not…
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The Good Nurse
Last time I mentioned how aggravating it is that medical staff is so overworked that too often patients are left waiting for responses way too…
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Just Leave A Message Maybe I’ll Call
The Sundown Rule is when you try to respond to requests by sundown the same day they are received. Today we have more ways to…
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Bedside Manners, Please
Geez! I never want a doctor to speak in glitter-fluff and rainbows but dang a bit of bedside manner can do a patient good. Today…
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Support Groups
I’m actually glad that I didn’t know anyone else with juvenile rheumatoid arthritis (JRA) growing up. I didn’t have access to support groups so I…
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Holiday Fatigue of a Different Kind
Most of us start wearing out from all the holiday festivities by now. Having time off to get things done or just browse should be…
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Heart Punch
Yesterday a new symptom/event happened. A few minutes into my treadmill run a chest sensation happened. Not the typical heart flutters but like my heart…
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