It may be true that nobody really cares if you go to the party or not, but you care. Chronic conditions can really give a…
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Category: Community Advocacy
Don’t Look At Me But Please See Me
If your chronic condition causes physical changes in your appearance, it can be hard to ignore the looks. For me, the joint damage has gotten…
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Stress Makes Chronic Conditions Worse
This infographic caught my attention while I was waiting for my doctor. It seems like the first statement cancels out the second if I’m being…
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The Chronic Complainer
Dealing with a chronic autoimmune condition often means moving through life with the best intentions of realistic positive intent. Understanding that the main feature of…
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Imposter Syndrome
Two clinical psychologists, Pauline Rose Clance and Suzanne Imes, first identified and named a phenomenon back in 1978, ‘imposter syndrome.” This is the condition of feeling anxious and not…
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Support Group vs. Gripe Group
It’s nice to have endless information at our fingertips. However, there are times when ignorance is bliss when it comes to finding support for a…
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How To Relate
Years ago I received some responses to a blog that upset me. They upset me because I didn’t know how to help. I remember one…
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What Do I Do?
So the bootcamp is a bust. It’s wonderful if you’re starting at zero but I’m at this weird place where I need a bootcamp for…
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I’ve Been Sent To Bootcamp
My long covid doctor doesn’t know what else to do so I’ve been sent to bootcamp. In an effort to provide me with support one…
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Careful What You Wish For
When I say I want my test results to reveal something, I’m always careful to say “reveal something fixable.” I’m nervous because the CT scan…
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