A few posts ago I let you know that my infectious disease specialist didn’t see anything on my cardio-pulmonary test results. It was actually super…
View More What NowCategory: Community Advocacy
Get A Dog
I preface this with if you have the means, of course, but IMHO if you do not have a pet and have a chronic condition,…
View More Get A DogPersistence is Key
When you deal with anything chronic you will need to become persistent if you’re not already. Drop any feelings of passiveness at the door because…
View More Persistence is KeyBefore You Speak
Intention is very important when people speak. Especially when it’s clumsy. That’s why I try to put someone’s good intentions ahead of misdirected words. However,…
View More Before You SpeakA Need Indeed
I hated leaving the last post on such a negative note so I dug deep and remembered something good! This morning I needed to reschedule…
View More A Need IndeedEnd of My Rope
They say when you’re at the end of your rope to tie a knot and hang on. I don’t know if I can tie any…
View More End of My RopeThe Good Nurse
Last time I mentioned how aggravating it is that medical staff is so overworked that too often patients are left waiting for responses way too…
View More The Good NurseJust Leave A Message Maybe I’ll Call
The Sundown Rule is when you try to respond to requests by sundown the same day they are received. Today we have more ways to…
View More Just Leave A Message Maybe I’ll CallBedside Manners, Please
Geez! I never want a doctor to speak in glitter-fluff and rainbows but dang a bit of bedside manner can do a patient good. Today…
View More Bedside Manners, PleaseSupport Groups
I’m actually glad that I didn’t know anyone else with juvenile rheumatoid arthritis (JRA) growing up. I didn’t have access to support groups so I…
View More Support Groups