Try, Try, And Try Again
A few weeks ago my rheumatologist and I decided to have me try a different medication. After a few months on Xeljanz, I wanted to…
They say when you’re at the end of your rope to tie a knot and hang on. I don’t know if I can tie any…
View More End of My RopeJust got blocked. Trying to find another COVID clinic. Barnes-Jewish Hospital (BJH) is trying but I am not making progress. So, in an effort not…
View More Block By BlockLast time I mentioned how aggravating it is that medical staff is so overworked that too often patients are left waiting for responses way too…
View More The Good NurseThe Sundown Rule is when you try to respond to requests by sundown the same day they are received. Today we have more ways to…
View More Just Leave A Message Maybe I’ll CallGeez! I never want a doctor to speak in glitter-fluff and rainbows but dang a bit of bedside manner can do a patient good. Today…
View More Bedside Manners, PleaseI’m actually glad that I didn’t know anyone else with juvenile rheumatoid arthritis (JRA) growing up. I didn’t have access to support groups so I…
View More Support GroupsMost of us start wearing out from all the holiday festivities by now. Having time off to get things done or just browse should be…
View More Holiday Fatigue of a Different KindYesterday a new symptom/event happened. A few minutes into my treadmill run a chest sensation happened. Not the typical heart flutters but like my heart…
View More Heart PunchIf you’ve ever felt neglected by medical professionals, then you need to keep reading. You should NOT feel this way. These “pros” have committed their…
View More Advocate For YourselfLet Ruff Lyfe Pet Services take care of your furry friends! Ruff Lyfe offers a wide variety of pet services putting quality and safety first.…
View More The Twisted Podcast: Ruff Lyfe Pet Services