Try, Try, And Try Again
A few weeks ago my rheumatologist and I decided to have me try a different medication. After a few months on Xeljanz, I wanted to…
How To Relate
Years ago I received some responses to a blog that upset me. They upset me because I didn’t know how to help. I remember one…
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What You Have, Not Who You Are
Growing up with an autoimmune disease has advantages, in a weird way. For me, I could mostly hide it from people early on. When you…
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What Do I Do?
So the bootcamp is a bust. It’s wonderful if you’re starting at zero but I’m at this weird place where I need a bootcamp for…
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I’ve Been Sent To Bootcamp
My long covid doctor doesn’t know what else to do so I’ve been sent to bootcamp. In an effort to provide me with support one…
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Careful What You Wish For
When I say I want my test results to reveal something, I’m always careful to say “reveal something fixable.” I’m nervous because the CT scan…
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What Now
A few posts ago I let you know that my infectious disease specialist didn’t see anything on my cardio-pulmonary test results. It was actually super…
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Get A Dog
I preface this with if you have the means, of course, but IMHO if you do not have a pet and have a chronic condition,…
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Persistence is Key
When you deal with anything chronic you will need to become persistent if you’re not already. Drop any feelings of passiveness at the door because…
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Before You Speak
Intention is very important when people speak. Especially when it’s clumsy. That’s why I try to put someone’s good intentions ahead of misdirected words. However,…
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A Need Indeed
I hated leaving the last post on such a negative note so I dug deep and remembered something good! This morning I needed to reschedule…
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